It's been a month since we shared our Unexpected Journey video with you all and the support has been amazing!! The video has been shared hundreds of times, viewed thousands of times, and hopefully is continuing to bring awareness to Joubert Syndrome. Because we wanted to direct people to directly donate to the foundation rather than a crowdfunding site, we don't have an easy way to track the donations that have been made. We know from people who have told us they have donated that we are VERY close, if not all the way to reaching our goal of $10,000. If you donated and feel comfortable, please let us know how much you donated so we can track the progress! If you wish to remain anonymous, we completely respect your wish to remain private, but we do want you to know how much not only us, but other families affected by Joubert Syndrome appreciate your generosity. Thanks to everyone for being a part of our journey and watching our boys grow and develop!
You can email me at annaelyse@gmail.com :)
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